South Dakota Department of Health – Notice of Hearing to Adopt Rules 44:19:01:04


FORM 6

DEPARTMENT OF HEALTH

NOTICE OF HEARING TO ADOPT RULES

A public hearing will be held at the Sioux Falls One Stop, Conference Room Oak B, 1501 S. Highline Avenue, Sioux Falls, South Dakota, 57110, on September 23, 2026, at 2:00 p.m. Central Time, to consider the adoption and amendment of proposed Administrative Rule of South Dakota numbered

  • 44:19:01:04

The effect of the rule will be to add Duchenne Muscular Dystrophy, Mucopolysaccharidosis Type I, and Mucopolysaccharidosis Type II to South Dakota’s newborn screening panel.

The reason for adopting the proposed rule is to screen newborns to detect Duchenne Muscular Dystrophy, Mucopolysaccharidosis Type I, and Mucopolysaccharidosis Type II promptly after birth and provide follow-up care and treatment, when indicated, to reduce long term effects of these conditions.

Persons interested in presenting amendments, data, opinions, and arguments for or against the proposed rules may appear in-person at the hearing, mail them to the South Dakota Department of Health, Attn: Newborn Screening Program, 1501 S. Highline Avenue, Suite 3D, Sioux Falls, SD 57110, or e-mail them to Newborn Screening Program at

DOHNewbornScreening@state.sd.us. The deadline to submit any such written comments for consideration is October 3, 2026. Materials sent by mail must reach the Department of Health by 5 p.m. Central Time on October 3, 2026.

After the written comment period, the Department of Health will consider all written and oral comments it receives on the proposed rules. The Department of Health may modify or amend a proposed rule at that time to include or exclude matters that are described in this notice.

For Persons with Disabilities: This hearing will be located at a physically accessible place. Please contact the Department of Health at least 48 hours before the public hearing if you have special needs for which special arrangements can be made by calling (605) 367-5363.

Copies of the proposed rules may be obtained without charge from the following address, the Department of Health’s website at doh.sd.gov/News, and/or rules.sd.gov; South Dakota Department of Health, 600 East Capitol Avenue, Pierre, South Dakota 57501.

Published once on September 3, 2026, at the total approximate cost of $26.96 and may be viewed free of charge at www.sdpublicnotices.com and www.aberdeeninsider.com